Hemoglobin Disorders
Thalassemias
◈ Thalassemia International Federation - http://thalassaemia.org.cy/
◈ Cooley’s Anemia Foundation - https://www.thalassemia.org/
◈ Northern California Comprehensive Thalassemia Centre - https://thalassemia.com/default.aspx#gsc.tab=0
◈ United Kingdom Thalassemia Society - https://ukts.org/
◈ Thalassemia and Sickle Cell Australia (TASCA) - https://www.tasca.org.au/
◈ Emirates Thalassemia Society - https://thalassemia.org.ae/
◈ Thalassemia Society Singapore - https://thalsocietysg.org/
◈ Thalassaemia Federation of Pakistan - http://tfp.org.pk/
◈ Bangladesh Thalassemia Federation - https://www.thals.org/
◈ Thalassemia Foundation of Canada - http://www.thalassemia.ca/
◈ The Egyptian Thalassemia Association - http://www.thalass-eg.org/
◈ Greek Thalassemia Federation - https://www.eotha.gr/
◈ Thalassemia International Federation
◈ Thalassaemia Patients Connect
◈ Thalassemia Patients, Family and Friends
◈ Cooley’s Anemia Foundation
◈ ThalPal
◈ Federation of Malaysia Thalassaemia Societies
◈India groups
◈ United Kingdom Thalassaemia Society
◈ National Health Mission India
◈ Thalassaemia International Federation
◈ Beta Thalassemia - causes, symptoms, diagnosis, treatment, pathology -https://www.youtube.com/watch?v=oH6SMG3Ykjg&vl=en
◈ Alpha-thalassemia - causes, symptoms, diagnosis, treatment, pathology -https://www.youtube.com/watch?v=R-POSKAhBL0
◈ What is thalassemia - https://www.youtube.com/watch?v=JxuupecxHO8
◈ Reimaging beta-thalassemia and its treatment - https://www.youtube.com/watch?v=JDL9hO4xVQE
◈ All about thalassaemia - https://www.youtube.com/watch?v=Ul7m_FNsd_c
◈ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6765258/
◈ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3425167/
◈ http://perspectivesinmedicine.cshlp.org/content/2/11/a011833.full
◈ https://www.nature.com/articles/d41587-019-00026-3
◈ https://www.nejm.org/doi/full/10.1056/NEJMoa1910182
◈ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6440118/
◈ https://www.jwatch.org/na51117/2020/03/26/luspatercept-transfusion-dependent-thalassemia
Sickle Cell Disorders
◈ Sickle Cell Disease Coalition - http://www.scdcoalition.org/
◈ Sickle Cell Disease Association of America - http://www.sicklecelldisease.org/
◈ Sickle Cell Information Center - http://scinfo.org/national-sickle-cell-organizations/
◈ Sickle Cell Society - https://www.sicklecellsociety.org/
◈ Children’s Sickle Cell Foundation - http://cscfkids.org/
◈ Sickle Cell 101
◈ Sickle Cell Disease Association of America
◈ Sickle Cell Community Consortium
◈ Sickle Cell Disease Support Group
◈ Faces of Sickle Cell Disease
◈ Sickle Cell Anemia Foundation of Oregon
◈ India groups
◈ National Institutes of Health- https://www.nhlbi.nih.gov/files/docs/guidelines/sc_mngt.pdf
◈ Centers for Disease Control and Prevention- https://www.cdc.gov/ncbddd/sicklecell/recommendations.html
◈ ASH Clinical Practice Guidelines on Sickle Cell Disease-https://www.hematology.org/education/clinicians/guidelines-and-quality-care/clinical-practice-guidelines/sickle-cell-disease-guidelines
◈ Sickle Cell Society- https://www.sicklecellsociety.org/wp-content/uploads/2018/05/Standards-for-the-Clinical-Care-of-Adults-with-Sickle-Cell-in-the-UK-2018.pdf
◈ American Society of Hematology 2020- https://ashpublications.org/bloodadvances/article/4/8/1554/454384/American-Society-of-Hematology-2020-guidelines-for
◈ Sickle cell anemia - causes, symptoms, diagnosis, treatment & pathology - https://www.youtube.com/watch?v=fIIJmg_1hv0
◈ What Is Sickle Cell Anemia and How Do You Get It?- https://www.youtube.com/watch?v=0XpNz5KVFIU
◈ What is Sickle Cell Anemia - https://www.youtube.com/watch?v=iTm7jHIZAic