◈ National Hemophilia Foundation

• https://www.facebook.com/NationalHemophiliaFoundation
• https://www.facebook.com/HemAware-en-espa%C3%B1ol-629304527136923/
• https://twitter.com/NHF_Hemophilia
• https://twitter.com/HemAwareespanol

◈ My hemophilia team

• https://www.facebook.com/MyHemophiliaTeam/
• https://twitter.com/HemophiliaTeam

◈ Hemo girls rock

• https://twitter.com/HemoGirlsRock

◈ BloodStream Media

• https://twitter.com/BloodStreamInfo

◈ World Federation of Hemophilia

• https://twitter.com/wfhemophilia
• https://www.facebook.com/wfhemophilia

◈ India groups

• https://www.facebook.com/yghfi/
• https://www.facebook.com/groups/293024347384596/
• https://www.facebook.com/groups/117299178301385/

◈ https://www1.wfh.org/publications/files/pdf-1472.pdf

◈ https://www.hemophilia.org/Researchers-Healthcare-Providers/Medical-and-Scientific-Advisory-Council-MASAC/MASAC-Recommendations

◈ https://www.rch.org.au/clinicalguide/guideline_index/Haemophilia/

◈ Approach to bleeding disorders - https://www.youtube.com/watch?v=uXNLwCMdHPk

◈ Anyone can have a bleeding disorder - https://www.youtube.com/watch?v=sE3NMLsxPY8

◈ https://www.ashclinicalnews.org/news/from-the-blood-journals/blood-advances/early-fviii-prophylaxis-improves-joint-outcomes-severe-hemophilia/

◈ https://www.ashclinicalnews.org/news/latest-and-greatest/fda-approves-coagulation-factor-viia-recombinant-jncw-hemophilia/

◈ https://www.ashclinicalnews.org/news/literature-scan/hemophilia-gene-therapy-offers-sustained-clinical-benefit/

◈ https://www.ashclinicalnews.org/online-exclusives/flt180a-shows-efficacy-hemophilia-b-high-doses/

◈ https://www.ashclinicalnews.org/on-location/ash-annual-meeting/updates-ash-clinical-practice-guidelines-development/

◈ https://news.wfh.org/specific-risks-of-covid-19-to-the-bleeding-disorders-community/

◈ https://www.businesswire.com/news/home/20200801005002/en/Takeda-Present-Rare-Bleeding-Disorders-Research-Highlighting

◈ https://hemophilianewstoday.com/2020/03/04/patients-bleeding-disorders-given-global-platform-awareness-campaign/

◈ https://hemoalliance.org/event/nhf-bleeding-disorder-conference-2020/

◈ https://www.bleedingdisorders.com/community/events

◈ https://www.hemophilia.org/Events-Educational-Programs

◈ Factor It In

• https://www.facebook.com/walkfactor11in

◈ India groups

• https://www.facebook.com/yghfi/
• https://www.facebook.com/groups/293024347384596/
• https://www.facebook.com/groups/117299178301385/

◈ https://www.uptodate.com/contents/factor-xi-eleven-deficiency

◈ https://emedicine.medscape.com/article/209984-treatment

◈ https://www.ahcdo.org.au/documents/item/70

◈ https://onlinelibrary.wiley.com/doi/pdf/10.1111/bjh.13058

◈ https://www.rarebleedingdisorders.com/bleeding-disorders/factor-13.html

◈ Hemophilia C (factor XI deficiency) -https://www.youtube.com/watch?v=6E7eEuNb5TE

◈ Christmas disease - https://www.youtube.com/watch?v=ARzes4LvVmk

◈ Factor XIII Deficiency (Fibrin Stabilizing Factor Defect) - https://www.youtube.com/watch?v=ZxH3tibn830

◈ https://www.healio.com/news/hematology-oncology/20120325/fda-approves-first-treatment-for-factor-xiii-deficiency

◈ https://ashpublications.org/blood/article/134/6/501/260734/Factor-IX-for-treating-factor-XI-deficiency

◈ https://www.hematologyandoncology.net/archives/may-2014/a-new-era-of-therapy-for-congenital-factor-xiii-deficiency/

◈ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3674014/

◈ https://ashpublications.org/blood/article/119/22/5111/105460/Recombinant-factor-XIII-a-safe-and-novel-treatment

◈ https://hemophilianewstoday.com/2020/03/04/patients-bleeding-disorders-given-global-platform-awareness-campaign/

◈ https://hemoalliance.org/event/nhf-bleeding-disorder-conference-2020/

◈ https://www.bleedingdisorders.com/community/events

◈ https://www.hemophilia.org/Events-Educational-Programs

◈ Factor V Leiden Support

• https://www.facebook.com/groups/fvlsupport/

◈ Factor V Leiden UK Support

• https://www.facebook.com/Factor-V-Leiden-UK-Support-UK-1648985225351658/

◈ Factor V Leiden and Pregnancy

• https://www.facebook.com/groups/17242557567/

◈ https://www.nature.com/articles/gim200584

◈ https://ashpublications.org/bloodadvances/article/2/22/3317/16094/American-Society-of-Hematology-2018-guidelines-for

◈ https://www.stoptheclot.org/wp-content/uploads/2014/02/FactorVLeiden-lw.pdf

◈ Factor V leiden - causes, symptoms, diagnosis, treatment, pathology- https://www.youtube.com/watch?v=IDgK9xPo3no

◈ Five facts about Factor V Leiden - https://www.youtube.com/watch?v=4lt93xYGiw0

◈ Von Willebrand Disease Support Group

• https://www.facebook.com/VonwillebrandVWD/

◈ Von willebrand disease - bleeding disorders – vwd

• https://www.facebook.com/groups/8103568950/

◈ https://www.nhlbi.nih.gov/files/docs/guidelines/vwd.pdf

◈ https://www.haemophilia.org.au/HFA/media/Documents/Conference%202009/daly-drjames.pdf

◈ https://www.cdc.gov/ncbddd/vwd/guidelines.html

◈ What is Von Willebrand Disease - https://www.youtube.com/watch?v=I-uYvkTVwiM

◈ Von Willebrand Disease - https://www.youtube.com/watch?v=68UDgLGc0sQ

◈ Von Willebrand Disease - ttps://www.youtube.com/watch?v=D0ahHF9oNY0

◈ Von Willebrand Factor - https://www.youtube.com/watch?v=EEE4ReO1Pxs

◈ https://www.ashclinicalnews.org/news/a-new-treatment-option-for-patients-with-severe-von-willebrand-disease/

◈ https://ashpublications.org/hematology/article-abstract/2019/1/590/422612/New-therapies-for-von-Willebrand-disease

◈ https://www.trialsitenews.com/new-von-willebrand-disease-clinical-trials-focused-on-prophylactic-treatment-and-pregnancy/

◈ https://news.wfh.org/category/wfh-news/

◈ https://haemophilia.ie/services-and-support/conferences-events/calendar-of-events-for-2020/